The Baby and the Giant - Urgent Response Needed!
There has been a lot of talk about healthcare reform as of late. After discovering and researching the following material about a four month old named Jaeli, I believe we need a watchdog put into place as a minimum. I cannot help but wonder what would be the current status of Baby Jaeli under the currently proposed changes coming out of Washington. I'll leave that speculation for another time. The thing that I want to get across here is that there is a tiny life in need and the health insurance involved seems to be making matters worse instead of better.
Jaeli(See http://angengland.com/jaeli for more information and a way to help.)
Jaeli is a four month old (at the time of this writing) in Vermont. The little girl was born with a number of health issues; 2 holes in her heart which are almost healed, she has a rare (only four known cases) chromosome disorder that has caused a number of health problems including internal organs that are located in the wrong places, and she cannot consume formula, cow's millk or soy products. Breast milk is the only known option for Jaeli.
Jaeli's mother, Brandy, is doing all she can to take care of the baby, who is being treated at Dartmouth Hospital. Enter, now, the health insurance company. From the information I have at this time, the cost of breast milk is very expensive and the insurance company wants the baby switched to formula. Herein lies the problem, every formula that has been tried has resulted in Jaeli coughing up blood. Apparently, the insurance company does not believe this is the case. The hospital won't order fresh supplies without cash in hand because the insurance company will not support the breast milk regimen. The family is trying to raise funds to provide the needed breast milk and there is an urgent need for a large outpouring in the next few days along with a critical need for long term support - perhaps a corporate sponsor. You can help by going to http://angengland.com/jaeli and clicking the PayPal button in the sidebar.
Lactose Intolerance and Milk Allergy - Confused
I am including this information to help others who may have a child with milk allergies though I pray you do not have to face the challenge Jaeli and Brandy are facing. It is very common to confuse lactose intolerance with milk allergies. Quoting from FoodAllergySolutions.com, "Lactose intolerance is your intestine's reaction to milk sugar. A milk allergy is a systemic immune reaction against milk proteins." (http://www.foodallergysolutions.com/lactose-intolerance.html Oct 7, 2009) There are more than 50 million lactose intolerant Americans while approximately 66% of the global population have difficulty digesting lactose. (ibid.) Lactose intolerance is rare in infants but, a milk allergy is more common in an infant than in someone older. Most of the time a milk allergy will go away around the age to 3 to 5 years old.
I am not a medical expert but I have done some basic research and discovered that there are three parts of milk that can cause a reaction.These are milk sugar (lactose), milk protein and whey protein. The symptoms of milk allergies in infants very closely resemble those for lactose intolerance. The symptoms can include nausea, vomiting, reflux, refusal to eat, diarrhea and blood in stools. If these symptoms are accompanied by sniffles, constant congestion, wheezing, and/or rashes it is more likely to be an allergy rather than intolerance. There are numerous resources on the Internet for more information. If you suspect your child has any type of allergy consult your doctor.